#BRAVELIKECHLOE

GOAL MET!

Chloe is a 10 year old from Moseley, VA and we’re on a mission to raise
$10,000 to send Chloe and her family on a Dream Trip to Disneyland
where they can make amazing memories together OUTSIDE of the hospital!

Chloe is a 10 year old from Moseley, VA. She is the most caring and compassionate girl. Despite all that she has gone through, she is empathetic towards others.

Chloe’s disease presentation has been diagnosed as Central Collecting Lymphatic Anomaly with a PIK3CA genetic mutation. The family has been told by the top experts in the field that Chloe is one in a million with her presentation. Chloe is currently medically stable but there is no guarantee how long that will last. She will have to continue to navigate this disease for the rest of her life. There is no cure.

Chloe’s journey started when she began presenting with odd symptoms including bladder incontinence, headaches, and abdominal pain. After months of wearing a potty watch, bladder control medication, and pelvic floor therapy, the bladder leaking only intensified. After being seen by numerous doctors, an MRI showed a massive retroperitoneal and abdominopelvic lymphatic malformation.

Chloe had a procedure done where they opened her abdomen, glued the leaking channels, and then surgically attached a lymphatic channel to the lymphatic vessel to drain the fluid. Chloe has had over 30 procedures in the last year alone. During her most recent hospital stay, they opened her up again to make a new vein to the lymphatic channel however this created new leaks in her neck, causing new issues.

We are on a mission to raise $10,000 to send Chloe and her family on a dream trip to Disneyland where they can make amazing memories together OUTSIDE of the hospital!